Cystic fibrosis is a complex condition that affects thousands of people in a number of life-altering ways. But we’re working to ensure that everyone living with CF gets the best possible care, treatments and support so that they can live lives unlimited by their condition. Read on to find out how.
Hear from specially-trained advisors in Northern Ireland who are working on a Trust-funded scheme to offer specialist benefits support to people living with cystic fibrosis, and don't forget to visit our Facebook page on Wednesday 12 June to hear Sangeeta and Becky from our information and support team answer your questions about benefits and grants.
Fantastic clinical care
Find out how we're supporting the highest standard of clinical care for people with cystic fibrosis by funding clinical fellows like Dr Caroline Elston. On Tuesday you'll hear about our new map, which allows you to explore how many people with cystic fibrosis there are in different areas across the UK, and Carlie, who has cystic fibrosis, will be taking over our Instagram channel on Tuesday 13 June to talk about her experiences with her CF team.
Through SmartCareCF, we’re using health tech to help people like Sammie manage their health, detect bugs early and stay out of clinic. Hear from her about how monitoring her health has affected her life, and find out what's next for digital healthcare and how it could change the lives of people with CF everywhere.
We’re empowering people like 24-year-old drag artist Jordy to access clinical trials, giving them hope and a role to play in changing the CF landscape. Hear from him about why he was born to be a star.
Now you’ve found out about the work we’re doing to support people with cystic fibrosis, take a look at how you can help us to achieve it.