- Who are we
- How we get your personal information
- What information we collect
- How we use your information
- How we will communicate with you
- What 'consent' and 'preferences' are
- Who we share your information with
- Children - anyone under the age of 16
- Social media
- Information & support services
- Your rights
Who are we?
In this policy references to the Cystic Fibrosis Trust, or Trust, or to ‘we’ or ‘us’ are to the Cystic Fibrosis Trust which is a registered charity in England and Wales 1079049, and in Scotland SC040196.
The Cystic Fibrosis Trust is what’s known as the ‘controller’ of the personal data you provide to us. We will usually collect basic personal data about you like your name, postal address, telephone number, email address and your bank details, if you are giving us a donation for example.
Sometimes we will collect other information about you such as your date of birth, gender, or your relationship to cystic fibrosis. We will always be very clear with you about the reasons why we may wish to collect such information, and we will only do so with your specific consent and permission.
Sometimes we appoint third parties to take on tasks for us like managing the production of print materials for delivery, including CF Life magazine, as well as the storage and delivery of fundraising materials such as running shirts. These third parties are known as 'data processors'.
If you would like a list of third party processors you can request it by contacting:
Data Protection Officer
Cystic Fibrosis Trust
Phone: 0203 795 2188
Regional Fundraising Volunteers
We may change this document from time to time to reflect the latest view of what we do with your information. Please check back frequently; you will be able to see if changes have been made by the date it was last updated at the end of the document