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Cystic Fibrosis Trust


Our Board of Trustees oversees our strategic direction and monitors how we deliver our objectives.

The diverse members of the Board combine their experiences and expertise to guide the Chief Executive, who works with the Senior Management Team to achieve the charity's vision. 

Please read the Cystic Fibrosis Trust - Governance Manual.

Our current Trustees are:

George R Jenkins OBE - Chairman

George was elected as Chairman of the Cystic Fibrosis Trust in July 2012. He was Deputy Chairman and Chairman of Governance and Audit at NHS Blood and Transplant in the immediate past, an organisation with approximately £500 million turnover and 6,000 staff providing national support services to the NHS, of which the most publicly aware subsidiary is the National Blood Service. George is also Chairman of Port of Dover and Dover Harbour Board. Previously he was Chairman of South London Healthcare NHS Trust, Interim Chairman of Maidstone and Tunbridge Wells NHS Trust, responsible for stabilising that organisation and replacing board and governance structures after high profile failings in clinical services, and Chairman of East Kent Hospitals Trust. He was Chairman of the Medway Dock Labour Board, Executive Chairman and Managing Director of the Transit Group and has held a number of executive and non-executive positions in the ports industry. George was awarded the OBE for services to healthcare in the 2011 Queen's Birthday Honours.

Find out more about our Chairman.

Caroline Cartellieri Karlsen

Caroline has held senior executive roles in retail and media. She currently runs a consulting business focusing on digital commerce and online media. She was previously COO of MySpace International and prior to that UK Managing Director of Expedia. Before that she held different positions at Kingfisher plc, including Head of Strategy and Commercial Finance Director. Prior to this, while living in New York, she set up her own e-commerce business selling luxury gifts. She started out her career as a consultant for the Boston Consulting Group and McKinsey & Co. Caroline's older daughter, born in 2010, was diagnosed with cystic fibrosis at four weeks old. Since then Caroline has been actively raising funds for the Trust, including by taking part in a 100km nightly cycle ride through London and by hosting a couple of black tie galas. She joined as a Trustee in 2013.

Sean Collins

Sean Collins had a forty year career with the accountancy firm KPMG, both in the UK and internationally, acquiring deep and extensive experience of finance, audit and corporate governance. He is a Crown Representative at HM Government Cabinet Office, where he helps oversee efficient procurement of resources. He is also a Non-Executive Director at Jersey Telecom as well as being a member of the Conduct Committee at the Financial Reporting Council, which regulates the UK accountancy profession. For many years he has been a Governor and Chairman at More House School in Farnham, a school specialising in the education of boys with learning difficulties, and also spent ten years as an advisor to Oak Lodge, a school for the profoundly deaf. He is also a trustee of the Royal Society for Asian Affairs, an educational charity, and has previously been Deputy Chairman of the Farnham Branch of Arthritis Research UK. He has a grandson who was diagnosed at birth with cystic fibrosis.

Ffyona Dawber

Patient wellbeing and clear communication have always been Ffyona’s passion. She originally trained as a nurse in the NHS, bringing her patient insight with her when she joined the respiratory clinical development team at GlaxoSmithKline (GSK). During her time at GSK, Ffyona held a variety of senior roles over a 10 year period.

Ffyona feels strongly that everyone should have access to understandable information about their condition and the medications they are taking. She has instilled this passion for patient education in the medical communications agency she founded in 2007. Ffyona has gained the respect of numerous clients she has worked with across the globe, and also the respect of her team, a large part because of her internal focus and commitment to corporate social responsibility. Over the last few years, the team have fund-raised for a variety of charities including the Cystic Fibrosis Trust.

Ffyona has both friends and family members living with cystic fibrosis and her desire to raise awareness about the condition stems from observing the real life impact the condition has on people close to her.

Louise King

Joining the Board in March 2015, Louise is a Technical Team Manager at Legal & General, and brings first-hand experience of life with cystic fibrosis, and a determination to make her “time on earth worthwhile.”

Professor Andrew Jones

Prof Andrew Jones has been a Consultant Physician at the Manchester Adult Cystic Fibrosis Centre since 2002 and holds an Honorary Clinical Chair at the University of Manchester. He has published over 100 papers. Prof Jones chaired the UK Cystic Fibrosis Trust Infection Control Group that developed national guidelines for control of B. cepacia complex, P. aeruginosa, MRSA and M. abscessus. He is a member of the UK Cystic Fibrosis Trust Microbiology Standards Working Group, and was previously a member of the Cystic Fibrosis Trust Research Advisory Committee 2004-2013, then a member of the Cystic Fibrosis Trust Research Strategy Implementation Board 2013-2014.

Professor Rosalind Smyth CBE

Rosalind Smyth is Director of the UCL Great Ormond Street Institute of Child Health, and Honorary Consultant Respiratory Paediatrician and non-executive director of Great Ormond Street Hospital NHS Foundation Trust. She graduated in medicine from Clare College, Cambridge and Westminster Medical School and trained in paediatrics in London, Cambridge and Liverpool. Until September 2012, she was Professor of Paediatric Medicine at the University of Liverpool and was Director of the NIHR Medicines for Children Research Network, which supported all clinical research with children in England, from 2005-2012. She was a member of the UK MHRA’s Commission on Human Medicines Committee 2009-13 and chaired its Paediatric Medicines Expert Advisory Committee (2002-13). Rosalind’s research interests began in the 1980s as a Cystic Fibrosis Research Fellow and include cystic fibrosis and respiratory virus infections. She has been responsible for the clinical care of cystic fibrosis patients for over 30 years.

Rosalind is a fellow and recent council member of the Academy of Medical Sciences (AMS) and through the Academy has a number of national roles in academic training and careers.  She is a member of AMS Mentorship Advisory Committee since 2015, a judge and organiser at AMS Spring Meeting since 2014 and has represented the Academy on NIHR Dean’s Advisory Committee since 2010. She is Chair of the MRC Clinical Training and Careers Committee. She was awarded Commander of the Order of the British Empire in the Queen’s New Year’s Honours List in 2015 for services to the regulation of medicines for children.

David Turner QC

David was called to the Bar in 1992 and has since specialised in commercial insurance, professional liability and commercial product liability cases. He became a Queen's Counsel in 2009. He has three children of whom the youngest was diagnosed with cystic fibrosis in 2008, shortly after her third birthday. His fundraising activities for the Cystic Fibrosis Trust include organising the original Great Strides 65 in the Surrey Hills. David has campaigned publicly to maintain the quality of clinical services and research at his daughter's specialist centre, and was a Patient and Public Engagement member of the Cystic Fibrosis Clinical Reference Group (the body that provided specialist clinical advice to NHS commissioners in England) from when it was formed in 2012 until its disbandment in 2016. He is a lay member of the Trust's Research Strategy Implementation Board and a member of the Finance Committee.

Michael Winehouse

Michael joined the Board in March 2015, bringing his experience of living with cystic fibrosis. A charity blogger and fundraiser, Michael currently works for the Children’s Society as a Philanthropy manager. He and his partner welcomed their first baby in August. Before joining the Board, Michael raised over £6,000 for the Trust by taking on a variety of fundraising challenges, including the London Marathon, skydiving and two appearances in the Nicky’s Whisper Challenge football match.

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

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