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Cystic Fibrosis Trust

Quality Improvement

Find out how the Cystic Fibrosis Trust’s new Quality Improvement Team is working to improve quality of care in CF centres across the UK.

What is Quality Improvement (QI)?

Quality improvement is about trying to make the health care you receive more:

Safe – trying to ensure the care you receive makes you better, not worse

Timely – do you receive the care and information you need, when you need it?

Effective – are the treatments and advice you’re receiving evidence-based? Do they work?

Efficient – helping your centre understand and use their resources to ensure optimal care

People-centred – ensuring your opinions on your care are listened to and acted upon

Equitable – reducing unnecessary differences in how care is provided across the UK

What does the Trust’s Quality Improvement Team do?

The QI team was established in 2018 to provide resources that help to support CF centres across the UK to improve the quality of the care they provide.

Upcoming projects

Patient Reported Experience Measures (PREMs) Survey

Our UK-wide patient experience survey will give participating CF centres insights into what their patients and families think about the health care they receive. Results of the survey will be compared to the UK average for each question, to allow centres to benchmark their performance. This will help CF teams identify potential areas for change. Running the PREMs survey every three years will track how patients’ feelings about their care change over time and help CF teams measure if their QI projects have had a positive impact.

Staffing tool

The staffing tool will give CF centres a yearly snapshot of staffing resources and information about how their staffing, vacancy and long-term leave levels compare to UK averages. It will provide a UK-wide picture, showing how staffing levels for different professional groupings are changing over time.

How can you get involved?

We are collecting Patient Reported Experience Measures from participating paediatric CF centres between September 2019 and September 2020. Check if your paediatric CF centre is participating here.

Adults with cystic fibrosis will have the opportunity to complete the survey in 2020.

Complete the paediatric survey

If your centre is on the participation list, complete the paediatric survey either in paper format at your clinic, or via the online version of the questionnaire below. Remember to only complete the below surveys if you or your child receives their care at a paediatric CF centre. Choose the link that corresponds to the correct age version for your child. Please read the Patient Reported Experience Measures (PREMs) survey data handling information before completing the survey.

0-12 years

13+ years

Participating centres

  • Addenbrookes Hospital, Cambridge
  • Alder Hey NHS Children’s Hospital, Liverpool
  • Birmingham Children's Hospital
  • Bristol Royal Hospital for Children
  • Crosshouse Hospital, Ayr
  • Derriford Hospital, Devon
  • Great North Children's Hospital, Royal Victoria Infirmary, Newcastle Upon Tyne
  • Hull and East Yorkshire Teaching Hospital
  • James Cook University Hospital, Middlesbrough
  • John Radcliffe Hospital, Oxford
  • Leicester Royal Infirmary
  • Noah's Ark Children's Hospital for Wales
  • Norfolk and Norwich University Hospital (Jenny Lind Children's Hospital)
  • North West Midlands CF Centre, Royal Stoke University Hospital
  • Nottingham Children's Hospital (Queen's Medical Centre)
  • Royal Brompton Hospital, London
  • Royal Cornwall Hospital
  • Royal Devon and Exeter Hospital
  • Royal Hospital for Children, Glasgow
  • Royal Hospital for Sick Children, Edinburgh
  • Royal London Children’s Hospital
  • Royal Manchester Children's Hospital
  • Sheffield Children's Hospital
  • Southampton Children's Hospital
  • University Hospital Wishaw, Lanarkshire

UK CF Registry

The Registry is an anonymised database of people with CF in the UK - a powerful tool for monitoring and auditing the care that people receive.

Resources for professionals

Explore the resources, programmes and awards that we offer to CF professionals to help them provide the best support they possible can to people with cystic fibrosis.


Contact our wonderful helpline team by telephone or email, Monday to Friday, for answers to your questions.