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Nutrition leaflets

Take a look at our series of nutrition leaflets, produced with the help of dietitians from the Cystic Fibrosis Dietitian Group UK (CFDGUK).

To order hard copies of these leaflets please contact our helpline by emailing helpline@cysticfibrosis.org.uk or by calling 0300 373 1000.

The Cystic Fibrosis Trust has worked with dietitians from the Cystic Fibrosis Dietitian Group UK (CFDGUK) to create these leaflets, which are part of a series of 20 leaflets and contain information about different aspects of nutrition for people with cystic fibrosis. More will be added to this page throughout the year when they have been published. Please check back from time to time to see what has been added.

These leaflets have been designed to be given out by a CF dietitian, along with their advice, and we would advise you to discuss this information with your CF dietitian.

Our 'leaving home and eating well' factsheet was highly commended, and came runner up in the special prize category for information for young adults, at the 2019 British Medical Association Patient Information Awards. Thank you to the dietitians and reviewers who gave their time to help us to create this resource.

BMA logo, Patient Information awards for the Highly commended category

Achieving a healthy weight in cystic fibrosis

This leaflet aims to provide information on achieving a healthy weight if you have cystic fibrosis. It includes information about: calculating BMI, difficulties gaining weight, what you can eat to help you gain weight, fortifying foods, easy ways to add calories to your meals, product labeling, nutritional supplements, tube feeding and more.

Download the leaflet (360KB)

Calcium and bone health in cystic fibrosis

This aims to inform you about the impact cystic fibrosis can have on bone health. It includes information about: low bone mineral density, how to minimise the risk of developing low bone mineral density, including information on weight, calcium, enzymes, physiotherapy, steroids, smoking and alcohol, vitamins and exercise. It also includes a section called "tasty tips for tip-top bones".

Download the leaflet (269KB)

Drinking alcohol and cystic fibrosis

This leaflet aims to help you drink sensibly if you choose to drink. It includes information about: the adverse effects of drinking alcohol, sensible alcohol limits, units, binge drinking, pregnancy, alcohol and liver disease, alcohol and CF-related diabetes, what to do if you think you have a drinking problem and ways to limit your alcohol intake.

Download the leaflet (190KB)

Eating well for children with cystic fibrosis

This leaflet aims to provide information about eating well for children with cystic fibrosis. It includes information about: the importance of eating well, what your child should be eating, pancreatic insufficiency, different food groups, family meals, meal ideas and following a high-energy diet in school.

Please note: If you are ordering a printed copy of this leaflet, please be aware that you will receive one leaflet called 'Pancreatic insufficiency and nutrition in cystic fibrosis (babies and children)', which contains this leaflet and two others: 'Pancreatic insufficiency in babies with cystic fibrosis' and 'Weaning for babies with cystic fibrosis'.

Download the leaflet (329KB)

Exercise nutrition in cystic fibrosis

This leaflet aims to provide information about exercise nutrition if you have cystic fibrosis. It includes information about: nutrient intake, hydration, special products and diabetes, as well as a timeline for food and fluid intake.

Download the leaflet (246KB)

Iron in the cystic fibrosis diet

This leaflet aims to provide information about how iron deficiency might affect you if you have cystic fibrosis. It includes information about: irony deficiency anaemia, recommended daily iron intake, iron and vitamin C, meeting your iron requirements and a sample meal plan.

Download the leaflet (274KB)

Leaving home and eating well with cystic fibrosis

This leaflet aims to provide information about eating well if you have left home and have cystic fibrosis. It includes information about: boosting your calories, breakfasts, staying charged up throughout the day, stocking up, budgeting and enzyme storage.

Download the leaflet (220KB)

Nutrition and pregnancy in cystic fibrosis

This leaflet aims to provide information about nutrition if you are pregnant and have cystic fibrosis. It includes information about: what to eat, healthy weight gain, vitamin and mineral supplements, foods to avoid, caffeine, peanuts, alcohol, pregnancy symptoms, adding nourishment to your diet, the Oral Glucose Tolerance Test and CF-related diabetes.

Download the leaflet (183KB)

Pancreatic sufficiency in babies with cystic fibrosis

This leaflet aims to provide information about pancreatic sufficiency and nutrition in babies with cystic fibrosis. It includes information about: what milk you should feed your baby, reflux, weaning and drinks. 

Please note: ​this leaflet is not available in print, please download and print it here.

Download the leaflet (255KB)

Pancreatic insufficiency in babies with cystic fibrosis

This leaflet aims to provide information about pancreatic insufficiency and nutrition in babies with cystic fibrosis. It includes information about: what milk you should feed your baby and how much you should feed them, drinking cow's milk and other drinks, reflux, pancreatic enzymes, and salt and vitamin supplements.

Please note: If you are ordering a printed copy of this leaflet, please be aware that you will receive one leaflet called 'Pancreatic insufficiency and nutrition in cystic fibrosis (babies and children)', which contains this leaflet and two others: 'Eating well for children with cystic fibrosis' and 'Weaning for babies with cystic fibrosis'.

Download the leaflet (253KB)

Post-lung transplant nutrition for people with cystic fibrosis

This leaflet aims to provide information about how your nutritional needs may change following a lung transplant. It includes information about the first few months following a transplant, weight management, bone health, cystic fibrosis-related diabetes (CFRD), vitamin supplements, gastrointestinal issues, raised cholesterol levels, kidney problems and chronic rejection.

Download the leaflet (249KB)

Salt in the cystic fibrosis diet

This leaflet aims to provide information about the importance of salt for people with cystic fibrosis. This leaflet is intended for use by adults, and does not apply to children.

Download the leaflet (231KB)

Staying hydrated and cystic fibrosis

This leaflet aims to provide information about staying hydrated when you have cystic fibrosis. It includes information about the importance of staying hydrated, the signs of dehydration and good hydration, fluid requirements, a drinking schedule, when you might need more fluid than normal, good sources of fluid and tips for staying hydrated.

Download the leaflet (251KB)

Vitamin supplements in cystic fibrosis

This leaflet aims to provide information about the vitamin supplements you might need to take if you have cystic fibrosis. It includes information about which vitamin supplements you might need, why you need to take extra vitamins, when you should take them, what they do, where you can find them in food, sunlight and vitamin D and other vitamins and health supplements.

Download the leaflet (249KB)

Weaning for babies with cystic fibrosis

This leaflet aims to provide information about weaning for babies with cystic fibrosis. It includes information about: weaning your baby with pancreatic insufficiency, tips for weaning, when to start weaning, what food and how much to give and pancreatic enzymes.

Please note: If you are ordering a printed copy of this leaflet, please be aware that you will receive one leaflet called 'Pancreatic insufficiency and nutrition in cystic fibrosis (babies and children)', which contains this leaflet and two others: 'Pancreatic insufficiency in babies with cystic fibrosis' and 'Eating well for children with cystic fibrosis'.

Download the leaflet (268KB)

More information

The information in these leaflets is based on clinical best practice and a consensus of opinion by dietitians within the CFDGUK. For detailed guidance on CF nutrition, please see the ‘Consensus document on nutritional management of cystic fibrosis’, published September 2016 by visiting our publications page.



Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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