You CF team and your parents might have spoken to you about adherence. It’s the technical term for doing your treatments. Many people with CF, no matter how old or experienced they are, struggle to do all of their treatments. Almost no one will do them all perfectly.
You might plan to take all of your tablets but forget one when you have a busy day. Or you might find that you sometimes skip your physio because it takes up a lot of time. You might even decide to stop doing all of your treatments, even though you know they keep you well. If you find yourself doing any of these things, you certainly aren’t alone.
“It’s good to be honest with your team as they won’t tell you off for missing things. They understand it’s a lot to juggle, as well as education or work. More often than not they’ll come up with a plan and work with you to get better and this doesn’t mean perfect adherence straight away either.” – Cicely
If you’re struggling with your treatments, try speaking to your CF team. They won’t tell you off or be shocked. They’ve probably spoken to hundreds of people just like you, who will have their own reasons for struggling with their treatments. Instead, they’ll want to know why you’re struggling and how they can help. Try to be honest with your new CF team as well, and don’t feel like you need to make ‘a good first impression’. They won’t judge you if you struggle with your treatments, and will want to help.
You could also speak to your family or friends, and try to explain to them why you find it hard to do your treatments. You might find that the people who love and care about you are worried or upset by the idea of you not doing your treatments.
There is a section in the transition booklet for families and carers that talks about adherence. You could ask them to read this before speaking to them, and it might help you to have these conversations.